Dianna Gunn recently interviewed me for her podcast, called the Spoonie Authors Podcast, a group which spotlights writers with disabilities.
For those who are unfamiliar with the phrase “spoonie,” the podcast offers this definition:
A Spoonie is a person who suffers from a chronic illness, condition, or disability that regularly drains them of their energy and/or causes acute pain, resulting in impaired function of ordinary activities. The nickname came from an article called The Spoon Theory by Christine Miserandino, which you can read on butyoudontlooksick.com. In my opinion, it’s still the best way to describe to non-Spoonies what life for us really feels like.
In The Spoon Theory, spoons are used as symbols for every-day activities, such as showering, making lunch, collecting the mail, and so on. Many of us don’t have enough ‘spoons’ to handle the simplest of routines.
Christina Chiu — working with the New York Writers Workshop and 2040Books — organized a virtual author event where she invited three writers to discuss our recent books which all touch on the subjects of “Hope, Healing and Loss.” Chiu’s recent novel is Beauty.
I was thrilled to discuss my medical MS memoir, Uncomfortably Numb, alongside memoirist Maya Lang who wrote What We Carry about her mother’s Alzheimer’s, and novelist Jacqueline Friedman whose That’s Not a Thing features a character who develops ALS.
The hour-long discussion was lively and varied, as we touched on topics from approaches to writing and research, to how the medical industry treats female patients differently than male ones.
I had to fend off Tedy, who kept trying to climb up on my chair and eventually succeeded. Then there was Max, who was snorting and moaning loudly on the floor. My husband decided it was the perfect time to make dinner so there were ambient cooking noises as well. Ah … the joys of the coronavirus quanantine and working from home!
The Republican — the daily newspaper for which I used to work way back in the day, back when it was called The Union-News –ran a feature story about my medical memoir, Uncomfortably Numb, and my experiences with MS.
Fatigue hit her hard while she was watching her son at a Christmas musical event at the high school in Southborough where she now lives. “Quite quickly, my thinking became foggy and my legs were on the verge of giving out,” O’Brien recalls. “I had to ask my husband to drive me home immediately. I spent the next several days in bed, unable to do what I wanted because my body needed the rest.”
I’ll be joining award-winning author, Bay Path University writer-in-residence and faculty member, the wonderful Suzanne Strempek Sheaon June 1 for a free webinar where we’ll discuss “Narrative Medicine and the Art of the Medical Memoir.”
Writer Michael Carlton said in Yankee Magazine,Songs from a Lead-Lined Room “is one of the most moving and important books ever written about the extraordinary pressures the disease places not only on the victim, but on family and friends as well.”
Strempek Shea and I worked together at the Springfield, MA daily newspaper, The Republican, and she has written blurbs for a number of my books. It was our connection that resulted in my attending and graduating from the Bay Path University MFA in creative nonfiction program, which she was instrumental in creating.
Please join us for a warm conversation between friends about the craft of writing about the innately personal topics of illness and medicine.
Gary Chester — whose wife Cathy Chester, an MS advocate & writer, blurbed my memoir — said the book is not just recommended for MS patients, but also for those who love them:
As a caregiver, I appreciated O’Brien’s role as a tour guide through the labyrinth of a seemingly healthy individual experiencing early symptoms of MS to the ultimate diagnosis and its consequences. The journey is not one of clinical observations that many MS patients and loved ones can check-off as they proceed through the book. It is a personal diary of the frustration, doubts, worries, and grievances of almost any MS patient.
Chester added, “She transports us through the dread in a manner that is thoroughly readable and relatable.”
To mark the beginning of Multiple Sclerosis Awareness month, HealthCentral interviewed me about my memoir — published today! — and how multiple sclerosis has affected me since my diagnosis:
In 2014, Meredith O’Brien was diagnosed with relapsing-remitting multiple sclerosis. The author, teacher, wife, and mother had spent more than two years seeking help for symptoms that were scary, strange, and unpredictable.
In her new memoir, Uncomfortably Numb, O’Brien shares her emotional journey from health to illness to empowerment. We talked with her about her experience.
HealthCentral: What was it like coming to terms with an MS diagnosis?
Meredith O’Brien: It was a hard learning curve. Early on, I fought it because I was angry about the fact MS was impinging on my life and my ability to do things. I experienced a lot of fatigue, but I didn’t listen to my body. I continued loading my days with all these activities, and then paid the price of lying in bed afterward, feeling exhausted.