Dianna Gunn recently interviewed me for her podcast, called the Spoonie Authors Podcast, a group which spotlights writers with disabilities.
For those who are unfamiliar with the phrase “spoonie,” the podcast offers this definition:
A Spoonie is a person who suffers from a chronic illness, condition, or disability that regularly drains them of their energy and/or causes acute pain, resulting in impaired function of ordinary activities. The nickname came from an article called The Spoon Theory by Christine Miserandino, which you can read on butyoudontlooksick.com. In my opinion, it’s still the best way to describe to non-Spoonies what life for us really feels like.
In The Spoon Theory, spoons are used as symbols for every-day activities, such as showering, making lunch, collecting the mail, and so on. Many of us don’t have enough ‘spoons’ to handle the simplest of routines.
Amy Wilson Sheldon — a writer and editor whose Instagram account, “A Lifely Read” discusses and features books and authors — recently reviewedUncomfortably Numb.
This is a different kind of memoir, and it should be noted that MS is a chronic disease and that you can’t ‘conquer’ it and watch it disappear. O’Brien has a reporting background and teaches journalism at Northeastern, so her book definitely reads as reportage. That’s important because her work lays bare the acute nuts and bolts of living with MS. (There are a couple of scenes that are particularly tough.) That being said, other things happen in one’s life that help shape how we’ll respond to crisis. In the author’s case, it includes her relationship with her mother (and coping with her death), infertility struggles, a reckoning with her career. (“While I cling to my identity as a writer like a drowning woman to a life raft, I haven’t accepted that I’m also the writer who takes two pricey pills a day with a tablespoon of peanut butter in the morning and evening.”)
How does one’s diagnosis, one’s obstacles shape a life? It’s more than not letting it “dominate” you.
I cried as I read Meredith’s prognosis. I don’t think I can ever express my feelings in words. Sometimes I wonder how our lives change within a fraction of a second. A diagnosis, untimely death – it’s as if, we were happy for a second and the next thing we know, we are hit by a freight train. It is easy to say “adjust to the new normal” or “learn to live with uncertainty” but it is not as easy as it sounds. Traumatic experiences make “adjusting” difficult.
The Booksmith of San Francisco, partnering with the literary journal Zyzzya, hosted a lunchtime chat between journalist and Black Widow author Leslie Streeter and myself, members of Lockdown Literature, a group of authors whose books have been published amid the pandemic.
Leslie and I talked about the challenges of writing memoir, of worrying about revealing too much information, and about how writing our books — hers about her husband suddenly dying as the couple was in the midst of adopting a child, mine about the death of my mom and the loss of my health courtesy of my MS diagnosis — discuss how we’ve dealt with involuntary changes in our lives.
We both read aloud from sections of our book as well. The section that I read from my book was on the impulsive decision to adopt a second dog — Tedy — so I could focus on something other than death and illness. Ironically, during the COVID-19 pandemic, this is exactly what many others have done in the face of their own helplessness.
You can purchase both of our books via Booksmith, which proudly sells all of the books published by the Lockdown Literature authors.