While I was gearing up to promote my memoir —Uncomfortably Numb, about the life-altering impact of my multiple sclerosis diagnosis — I realized I should probably tell my employer about both the memoir and the chronic illness.
Thus far, I haven’t had to ask for any accommodations, although I do have a handicapped parking pass to use on campus when I need it. But I thought it would be best if I told the administrator who runs my department in person. (This was well before the coronavirus caused nationwide school shut-downs.)
It prompted me to write an essay which was published by STAT News. The piece starts this way:
As I prepared to tell my employer that I have relapsing remitting multiple sclerosis, I worried about what to expect.
Maybe I’d get a shocked look from the administrator who oversees the department where I teach part-time. Or maybe I’d be quietly phased out, informed that future teaching opportunities have dried up.
This “big reveal” would be, according to multiple sclerosis advocates, a risky move.
Read the rest of the essay here.
Image credit: STAT News.
Way back in the late 1990s, when my husband and I were in fertility treatments, it seemed as though pregnant women were everywhere. In stores. On city streets. On TV and in movies. In my friend groups. At family gatherings.
When I was so craving a child — and failing to conceive one — seeing so many gestating women felt like grains of salt in an open wound. I distinctly remember trying to escape all things maternal on Mother’s Day 1997 when the angst of my infertility felt especially potent. I opted to watch NBA games. Certainly I could seek refuge from babies and all things maternal there. Wrong. Pre-recorded segments of athletes thanking their moms for all their support over the years were featured during breaks. Until I eventually became pregnant with twins, reminders of my infertility seemed painfully omnipresent.
I was reminded of those days after I was diagnosed with multiple sclerosis in 2014 and suddenly started paying close attention to every reference to the disease, whereas in the past, they’d whisk past me like the wind. The MS references I saw in pop culture in those early months after my diagnosis, were almost always dire and sent urgent pangs of fear about my future through my heart.
The National MS Society recently published my piece, “Fever Fatale” about this subject on its MS Connection. Here’s an excerpt:
“A fever could be life threatening.”
That single line from an old episode of “The West Wing” prompted me to immediately Google whether, in fact, a fever is fatal to someone with relapsing remitting multiple sclerosis, something with which I was diagnosed in the summer of 2014. Fresh from learning I had MS, this mere suggestion plunged me into a panic. A search of “fever and multiple sclerosis” yielded over 590,000 results.
Read the rest of the piece here.
Image credit: MS Connection.