My new piece at the National Multiple Sclerosis Society’s MS Connection blog tackles the topic of what it’s like for a someone (that would be me) to have an MRI when you’re claustrophobic, particularly when your head has to be enclosed by this lovely little thing called a “face cage.”
An excerpt of the piece:
“… [A] technician beckons me into the large room where the behemoth machine resides.
This is when the fun starts. And when I say ‘fun,’ I mean the opposite of fun. I really mean ‘terror.’ I mean a trapped-inside-something-and-can’t-get-out terror. It’s at this point when, after placing my head between two hard pieces of plastic, the technician clicks a hard plastic cage over my face and into those twin pillars. There is a relatively narrow rectangular opening above my face, but there’s no avoiding the fact that I am confined. The face cage is about two inches away from the tip of my nose. Its mere presence makes me feel like I can’t breathe. Like I’m being punished. Locked up.
Did I mention that I’m claustrophobic?”
Read the full post here.
My first post for the National Multiple Sclerosis Society’s website, MS Connection — about when the politics of the national healthcare debate becomes personal — has been published.
It’s about when you, or someone close to you, has an illness that, should the Affordable Care Act’s protections for pre-existing conditions be repealed, could render you uninsurable, potentially putting your health and your family’s finances at risk.
The piece begins this way:
Since last summer’s failed congressional efforts to repeal many provisions of the 2010 Affordable Care Act (ACA), the hashtag #IAmAPreExistingCondition has peppered countless social media updates.
Current and former cancer patients use it on Twitter, Facebook, and Instagram. Asthma sufferers post it, too. Ditto for people with diabetes, mental health issues and heart ailments.
Read the rest of the piece here.
Image credit: MS Connection.
The website The Mighty has published a piece of mine about the brutal impact of summertime heat and humidity on multiple sclerosis patients.
“I am locked in a personal war with heat and humidity,” I wrote in the piece, my first at The Mighty where I am now a contributing writer. “To me, they are more than mere summertime annoyances, inconveniences that cause one’s hair to frizz, make-up to melt off one’s face in a colorful oil slick, and perspiration to soak one’s clothing with unsightly blotches. To me, heat and humidity are my jailers.”
Read the whole essay here.
Image credit: The Mighty website.