Author Christina Chiu — who wrote the powerful Beauty (do yourself a favor and read it!) — invited three writers to tackle the topic of women & health, while she also shared candid stories of her own illness, as well as her son’s experiences with food allergies.
Poet Julie E. Bloemeke — whose collection of poems, Slide to Unlock, “investigates how modern technology redirects our erotic and familial lives” — discussed not only how she dealt with depression, but how it and various therapies for it influenced her writing.
I, meanwhile, read aloud a section of my multiple sclerosis-centric memoir Uncomfortably Numb where the neurologist who first examined me — after an MRI showed a lesion on my brainstem — suggested that my symptoms of numbness were likely “psychosomatic.”
I hope the discussion helps give people with illnesses and/or disabilities some sense that they are not alone.
My latest post for the National Multiple Sclerosis Society’s publication, Momentum Magazine, describes my initial reluctance — fueled by fear — to join an MS support group. But after attending several online support groups to promote my medical memoir, Uncomfortably Numb, I realized I was missing out.
Here’s how the piece begins:
I was diagnosed with relapsing-remitting multiple sclerosis in July 2014. Upon receiving my diagnosis, I reached out to the National MS Society for information. Included in the materials I received were contact details for MS support groups in my area. But despite the fact that I was perfectly able to attend a support group, I resisted.
I was petrified to sit, face-to-face, with my potential future.
Tatnuck Booksellers in Westborough, MA has signed copies of three of my books (a memoir, a novel and a work of nonfiction) for sale, just in time for the readers on your holiday lists. Given that COVID has severely affected small businesses like independent bookstores, I’m sure they’d appreciate your support.
Signed books include:
Uncomfortably Numb: a memoir. My medical memoir about the life-altering impact of a multiple sclerosis diagnosis. It chronicles the two years it took to get an MS diagnosis and confirmation that the symptoms I was experiencing weren’t simply in my imagination (as one physician suggested), as well as the uneasy piece I reached an uneasy peace with my post-MS life.
Mr. Clark’s Big Band: A Year of Laughter, Tears and Jazz in a Middle School Band Room. A book about the 2012-2013 school year I shadowed the Southborough, MA middle school jazz band as they were recovering from mourning the sudden death of one of their own, a 12-year-old trumpet player named Eric Green. This award-winning book would be great for any educators on your list.
Mortified: a novel about oversharing. Set in 2004 at the height of mommy blogging, this darkly humorous work of contemporary fiction follows a thirtysomething mom of two who started venting about her frustration with modern parenting through her blog. When her family discovers the unkind things she’s been writing about them online, well, all hell breaks loose.
The Republican — the daily newspaper for which I used to work way back in the day, back when it was called The Union-News –ran a feature story about my medical memoir, Uncomfortably Numb, and my experiences with MS.
Fatigue hit her hard while she was watching her son at a Christmas musical event at the high school in Southborough where she now lives. “Quite quickly, my thinking became foggy and my legs were on the verge of giving out,” O’Brien recalls. “I had to ask my husband to drive me home immediately. I spent the next several days in bed, unable to do what I wanted because my body needed the rest.”
I’ll be joining award-winning author, Bay Path University writer-in-residence and faculty member, the wonderful Suzanne Strempek Sheaon June 1 for a free webinar where we’ll discuss “Narrative Medicine and the Art of the Medical Memoir.”
Writer Michael Carlton said in Yankee Magazine,Songs from a Lead-Lined Room “is one of the most moving and important books ever written about the extraordinary pressures the disease places not only on the victim, but on family and friends as well.”
Strempek Shea and I worked together at the Springfield, MA daily newspaper, The Republican, and she has written blurbs for a number of my books. It was our connection that resulted in my attending and graduating from the Bay Path University MFA in creative nonfiction program, which she was instrumental in creating.
Please join us for a warm conversation between friends about the craft of writing about the innately personal topics of illness and medicine.
The Southborough Library and Recreation Departments co-hosted a virtual author event via Zoom where I discussed my memoir, Uncomfortably Numb, and fielded questions ranging from inquiries about multiple sclerosis to questions about the writing process.
I read several short excerpts from the memoir, including one about how, in the confusing aftermath of my MS diagnosis, I became obsessed with getting a second dog — a puppy — whom we named Tedy Wilson (after the New England Patriots’ Tedy Bruschi).
Now 5 years old, Tedy made a guest appearance.
Image credits: Ryan Donovan, Southborough Library, via Zoom.
Putting it in her “Liked A Lot” category, Kolsky Hertzig wrote of the memoir:
“It tells the story of the author’s life being rocked when she is diagnosed with a chronic disease (after being told by doctors that it was anxiety/all in her head). I thought it was really interesting to learn about how her illness has affected every aspect of her life, and I also thought it was a good commentary on how women’s concerns still often aren’t taken seriously by the medical community. It’s a quick read and a I love a good memoir.”